NPR had a story a few days ago on caring for an autistic child after you’re gone.
I was bawling in the car. I’ve written before about my cousin. It hits me hard in the chest. Fortunately, my cousin is not severely disabled like this. He’s very functional, just slow. I want to be there to help if it’s needed.
Plan your estates now if you have kids, developmentally disabled or not. There is no time like the present to think about the future.
It’s the same as emergency planning. The time to plan is when there is no crisis.
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My wife is a Speech Langauge Pathologist and works with autistic children. The stories are really heartbreaking. These parents just want their little ones to say, “I love you” to them. But they rarely do.